Do you diagnose hypermobile EDS?
Yes. We use the diagnostic criteria from the Ehlers-Danlos Society.
Are you a rheumatologist or genetics provider?
No. Our practice is internal medicine. We do have experience with ehlers-danlos syndrome patients though.
Can I get a diagnosis of hypermobile EDS in one visit?
Possibly. If you have enough information when you come to the visit we can do the evaluation. You will need a negative autoimmune disease panel. You will also need a cardiac echo report. Please bring pertinent medical records and imaging to your appointment. Usually, these initial visits last 45 mins-1 hr. The more complex your case, the more other appointments may be needed to assess your case.
Which forms should I bring to my appointment?
At a minimum you will need the chronic disease new patient intake template and the EDS symptom guide. You can fill out forms at the office but this will cut into your time with the provider.
What labs should I have done prior to the appointment/what labs will you do at the appointment?
It depends on your symptoms but usually we want to see a CBC c diff, CMP, ANA, RF, SED rate, CRP, ANCA, TSH c T4, HA1C in the past 6 months. In some cases, a Lyme panel, vitamin levels, and/or EBV panel is appropriate.
Can the practice request my medical records from my current provider?
Yes, we can with a medical release form signed by you.
Is Lydia a doctor?
No. She is a physician assistant.
What kind of treatment plans do you create?
We make a plan that includes an interdisciplinary approach. You will need other providers who manage your care. This might include a physical therapist, cardiologist, allergist, occupational therapist, and/or counselor/psychologist/therapist.
Can I visit from out of state?
Yes. We can see you in the office from out of state.
Can I do a telemedicine visit from out of state without an initial visit in the office?
Can I get diagnosed by telehealth?
Usually, no. Unless it’s a very obvious case we would need to see you in the office to diagnose.
Do you serve as a primary care for EDS patients?
Yes, we treat and manage symptoms for EDS patients.