Ehlers-Danlos Syndrome
Hypermobile Ehlers-Danlos Syndrome
Hypermobile Ehlers-Danlos Syndrome (hEDS) is a connective tissue disorder characterized by joint hypermobility, which often leads to frequent dislocations, chronic pain, and soft, fragile skin. Unlike other types of Ehlers-Danlos Syndrome, hEDS does not have a specific genetic marker, making diagnosis reliant on clinical evaluation and family history. People with hEDS may experience a wide range of symptoms, including fatigue, gastrointestinal issues, and cardiovascular symptoms such as postural orthostatic tachycardia syndrome (POTS). This makes management complex and often requires a multidisciplinary approach.
At our practice, we specialize in diagnosing and managing hEDS by focusing on both immediate symptom relief and long-term health strategies. Our care plan typically includes physical therapy for joint stability, pain management strategies, and monitoring for coexisting conditions such as mast cell activation syndrome (MCAS) and POTS. We emphasize personalized care because no two patients with hEDS have the same experience, and the disorder can significantly impact daily life.
We are committed to offering compassionate, comprehensive care for those living with hEDS, aiming to improve quality of life and overall well-being. Through chronic care management, behavioral health integration, and pain management programs, we strive to address the unique challenges faced by our patients with hypermobile Ehlers-Danlos Syndrome.
Ehlers-Danlos Syndromes
